I'm finding it difficult to use this site

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taniaaust1
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Joined: 07 Feb 2013 15:32
Location: Adelaide, South Australia

Re: I'm finding it difficult to use this site

Postby taniaaust1 » 12 Mar 2013 23:00

taniaaust1 wrote:Ryan..this person cant "just go and live an everyday life".. she's VERY SICK. Your comment was no different to you saying that to someone who has severe cancer or has two broken legs being told to go and live an every day life when all they can do is lay in bed. Its distressing for sick patients to hear people say that when they cant do it and are laying in bed wishing they could.

Ryan wrote:[I just wanted to quickly address this.
No, that's not what I'm suggesting, not by a long shot.
With all due respect, you don't seem to understand what I'm saying really...

obviously I didnt and still dont. I hope she doesnt find it upsetting.

Ryan wrote:However the dreams have taken over the daytime hours. This is what I read as being the problem. She doesn't know up from down, left from right... physical from non-physical. *THAT* is a major problem.


I agree THAT IS a major problem, I think everyone would see that as a major issue. I saw her issue as probably being combo of false awakenings (being grounded and centred may not necessarily stop false awakenings.. have you heard of being grounded stopping FAs?) and of a severe illness which is forcing her to sleep a lot.

Maybe it will be more helpful to her for you explain what you mean by your post .. how is she supposed to live a physical life more? when she's stuck in bed and finding herself NEEDING sleeping a lot and when awake so tired she's confusing things and can hardly function?

The quote below is about Narcolepsy. Those with Narcolepsy can often be literally dreaming when awake
The main characteristic of narcolepsy is Excessive Daytime Sleepiness (EDS), even after adequate night time sleep. A person with narcolepsy is likely to become drowsy or fall asleep or just be very tired throughout the day, often at inappropriate times and places. Daytime naps may occur with little warning and may be physically irresistible. These naps can occur several times a day. They are typically refreshing, but only for a few hours. Drowsiness may persist for prolonged periods of time. In addition, night-time sleep may be fragmented with frequent awakenings.

The classic symptoms of the disorder, often referred to as the "tetrad of narcolepsy," are cataplexy, sleep paralysis, hypnagogic hallucinations,


She's most likely a ME/CFS sufferer or someone with Narcolespy.. both of these things are neurological conditions and hence no matter how much she grounds or tries to pay attention to her waking life and focus on it, her condition isnt likely to be helped. A person with Narcolespy can be getting hypnagogic hallunations while on their feet trying to do things. She needs proper medical treatment. I know you arent trying to be offensive but your post played down what is probably a serious medical condition she needs to see a specialist for.
The only thing to fear is the fear itself

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taniaaust1
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Joined: 07 Feb 2013 15:32
Location: Adelaide, South Australia

Re: I'm finding it difficult to use this site

Postby taniaaust1 » 12 Mar 2013 23:17

Ryan.. sorry Im coming across strong in my post.

I almost got killed last year (a few times actually) but on one of the occassions I was in physical life walking across a busy road and cause I have medical issue much like the posters.. I completely dazed out in the middle of the road (suddenly was day dreaming) while a car was headed my way not far from me. I forgot I was crossing a busy road in real life while I was doing it loosing awareness of where I was. (that poster who posted could well be at risk of a similar thing happening to her). Fortunately as Im unable to leave my home without a support worker by my side due to my severe medical conditions (to also keep me safe in such events).. she grabbed my shirt and pulled me hard off the road, just out of the way of the car (learner plate driver too) which would of hit me.

It doesnt matter how much I try to focus in real life.. it doesnt help me cause I have a medical condition which can make me daze completely out etc NO MATTER WHAT IM DOING at the time. (Ive even fallen asleep with my head on the sink while trying to do the dishes!!) and I cant focus on many grounding things people do to ground eg exercise is the best grounding thing there is... but exercise actually negatively affects my condition and actually makes me more tired and even worst. The way I function best is to give my body whatever sleep its needing at the time even if that is hypersomnia (I used to only be able to be awake half an hour per day).
The only thing to fear is the fear itself

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Ryan
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Re: I'm finding it difficult to use this site

Postby Ryan » 13 Mar 2013 00:09

Please, *NEVER* apologize for trying to do the right thing.
I understand. I really do. :)

I'll try to expand on my post from before in a bit and add in the info you requested.

Re-reading the posts above... I think our first step is to really get a better understanding of what carohunter believes is wrong. Or a better sense of the symptoms.
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taniaaust1
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Joined: 07 Feb 2013 15:32
Location: Adelaide, South Australia

Re: I'm finding it difficult to use this site

Postby taniaaust1 » 15 Mar 2013 04:29

Ryan wrote:Please, *NEVER* apologize for trying to do the right thing.
I understand. I really do. :)

I'll try to expand on my post from before in a bit and add in the info you requested.

Re-reading the posts above... I think our first step is to really get a better understanding of what carohunter believes is wrong. Or a better sense of the symptoms.


she's probably not been able to find her own post again and forgot where it is. I'll send her the link to it in a pm and email.
The only thing to fear is the fear itself


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